Author Archives: MOFF

2020 Hike x Brunch: February 22

Come join us for the 6th Annual MOFF Hike x Brunch!

Where: Felsman Loop Trail. We will start hiking at the Patricia St. trailhead. The Brunch portion will take place at the Fernandez Residence in Edna Valley after the hike.

When: February 22 at 9 AM. The brunch will start around 10:30 AM

The VIP guests for the ALS Panel Discussion part of the brunch will be Jennifer McErlain and Claire Reich from the ALS Therapy Development Institute. People living with ALS (PALS) are encouraged to attend to hear the latest ALS research updates. 

Why we hike: Martha Olson-Fernandez was an avid hiker. She taught many people the importance of exercise and healthy living. We hike during this event for all those who are incapacitated in any way. We hike so that we can be an extension for those people to continue doing what they love.

This will be our last event at the Fernandez Residence. We hope to see everyone there 🙂

Please email giving@moffoundation.com if you have any questions.

ClinWiki x ALSA x MOFF

MOFF is very excited to be working with the ALS Association Golden West Chapter to populate data in the upcoming clinical trial platform: ClinWiki. This database will be user friendly and accessible to all those who wish to navigate the clinical trial landscape. MOFF is specifically working to organize the data from ALS clinical trials pulled from clinicaltrials.gov. The platform is in its beta stage but will soon be accessible to all.

In the meantime, if you are an ALS patient and would like guidance on the current active ALS clinical trials, ALS TDI is a great resource for you.

#GivingTuesday

Giving Tuesday was on December 3, 2019. The MOFF Giving Tuesday campaign emphasized the urgency that the ALS disease state needs funding. Below are a few examples of how your donation can impact the ALS community.

  • ALS is an expensive disease and can cost up to $200,000.00 a year for a single ALS household.
  • There are currently over 170 individuals living with ALS on the Central Coast of CA.
  • It can cost up to $2 billion to develop a drug. This number gets inflated when it comes to ALS treatments because it is going to take gene therapy or a combination of several drugs to address the complexity of the disease.

The Martha Olson-Fernandez Foundation has funded ALS drug development efforts since 2014. Your support during Giving Tuesday is what allows us to provide financial support to families living in our area.

Thank You!

7th Annual MOFF Golf Tournament

The weather was gorgeous out at Cypress Ridge Golf Course on October 5, 2019. Teams traveled from California and Arizona to support ALS patient care and research. Together we raised $114,680.00!! The VIP guests at the tournament were: Fred Fisher (President and CEO of The ALSA Golden West Chapter), Cherryl Goldstein (VP of Development for the ALSA Golden West Chapter), and Dr. Justin Ichida (USC Professor of Stem Cell Biology and Regenerative Medicine).

Results:

1st Place: Manny Silva, Brian Ball, Jon Pollock, Paul D’Ambra; Score: 55

2nd Place: Jim Orradre, Stephen Orradre, Duke Green, Bob Riddle; Score: 56

3rd Place: Nigel Whitehead, Josh Compton, Bill Compton, Will Sinclair; Score: 57

Hackers: Jerry Casey, Jennifer Taylor, Kyle Hooks, Kevin Voorhees; Score: 80

Closest to the pin (women): Karen Crawfis – 18ft

Closest to the pin (men): John Ronca – 9ft

Longest drive (women): Terri Garcia

Longest drive (men): Cliff Contreras

 

Awards Ceremony Speakers

We were honored to have Fred Fisher (left) discuss the impact of the MOFF Fund on patient care services on the Central Coast of CA.

Dr. Justin Ichida (right) discussed the ALS stem cell work his lab at the USC Keck School of Medicine has been conducting. The Ichida lab was the recipient of the ALS Research Grant Sponsorship ($10,000.00). The ALS Research Grant Donor was the Larry Fernandez Family. Read more about this transaction here

Thank You Volunteers! Your positive energy and helpfulness made this event possible.

Click here to view the MOFF Golf Tournament top sponsors!

MOFF x ALS Cure Project

The Martha Olson-Fernandez Foundation is proud to be in collaboration with the ALS Cure Project. The ALS Cure Project is run by Mike Piscotty who lost his wife, Gretchen Piscotty, to ALS in 2018. The Project is comprised of an executive council, a research counsel, and a business council. Natalie Fernandez, CFO at MOFF, sits on the business council. Read more about the ALS Cure Project’s vision and their $1 Billion grand prize here.

Mike Piscotty’s son, Stephen Piscotty plays for the Oakland A’s. The Piscotty family was featured in an ESPN Sports Center video when Gretchen passed away.