Martha was an inspiration to many. She truly was a woman defined by her actions. Her positive attitude, the life lessons she taught, her endless supply of energy and her athleticism were just few of her attributes. In the face of ALS, Martha was resilient and hopeful. She continued to treat each day like a new day and stayed creative by making cards until she passed away on December 17, 2012.

This page was created to provide resources for people living with ALS so that their journey with ALS is a little easier than Martha’s was. It was also created to help people living with ALS learn about their treatment options and connect with other people living with ALS. 

Many thanks to the attendees of the SLO ALS support group for motivating the resources on this page. 

Connect with people living with ALS

ALS News Today has inspiring vignettes written by ALS patients themselves. 

ALS support groups near me: ALSA.org

Learn about treatments other people with ALS are trying: PatientsLikeMe.com 

 

Find an ALS clinical trial near me

www.clinicaltrials.gov

www.alsa.org

www.als.net

Pro tips for people living with ALS

Do you use any medical devices that burn through your electrical bill? Check out the PG&E Medical Baseline Allowance Program.

 

Have you registered with the ALS registry yet? Your participation as an ALS patient is very important. The more demographic data and scientific data researchers have about ALS patients, the quicker treatment options can be discovered. 

If you are a person living with ALS and have any specific needs or questions, please reach out to us and we will do our best to connect you to the right resources. Never give up!