MOFF is encouraging ALS families to participate in this individualized survey which was developed by the ALS Association. The information from this survey will help ALS advocates fight for access to care and financial security for people with ALS and their families.
ALS Focus is a patient and caregiver led survey program that asks people with ALS and current and past caregivers about their needs and burdens. The goal is to learn as much as possible about individual experiences throughout the disease journey so that the whole ALS community can benefit.
All data collected is de-identified and shared free of charge to the entire ALS community.
Thank you very much for your time and feedback! FYI The survey ends on March 31st 2020!