Category Archives: ALS Community Updates

ALS Satellite Clinic in Santa Barbara, CA

UCSF Health ALS Clinic and Cottage Health in Santa Barbara have joined forces to run

ThinkALS Tool

The ThinkALS tool was developed by the ALS Association to assist clinicians in the ALS

MGH Expanded Access Protocol (EAP) Program

The Martha Olson-Fernandez Foundation will donate $30,000 from their upcoming 9th Annual Golf Tournament (02-Oct)

MOFF Response to Loss

The ALS community lost two incredible people this past Thanksgiving week. Leslie Sands (1951-2020) and

What Happened in Guam? (Halloween Edition)

Classic Halloween stories have a spooky setting (like a haunted house or an abandoned log

Latest ALS Research: I AM ALS

I AM ALS revamped their website! It looks great. MOFF’s favorite part of the new

ALS Research Paper Review (ALS RPR)

Natalie Fernandez is honored to be co-chair of the newly formed ALS Research Paper Review

Healey Platform Trial Monthly Updates

The clinical operations team involved with the Healey Platform Trial is truly going above and

COVID-19 Impact on ALS Clinical Research

COVID-19 Impact on ALS Clinical Research as of July 23, 2020 Of the 95 ALS

How I AM ALS is Influencing Clinical Trials Design

I. What is wrong with the current ALS clinical trial landscape? I am going to

1 in 300

There is a 1 in 300 is the lifetime risk that you will develop ALS.

A Solution to the ALS Diagnostic Delay

The amyotrophic lateral sclerosis (ALS) diagnostic journey is unique to each individual. It has puzzled

Healey ALS Platform Trial

What is the Healey Platform Trial? An ALS clinical trial that tests 5 different therapies