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# Martha Olson Fernandez Foundation – Bloom Where You Are Planted.

Raising Awareness Of ALS

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## Posts

- [News & Events](https://moffoundation.com/news-events/)
- [ALS Investment Fund](https://moffoundation.com/als-investment-fund/) - In Q4 2025 MOFF committed $250,000.00 to the ALS Investment Fund (ALS IF III) ALS IF III is a Venture Capital entity based in the Netherlands, that is cultivating a portfolio of companies developing potential therapies for neurodegenerative diseases. MOFF has historically philanthropically invested in the "valley of death" stage of drug development, or the
- [Complete: Fall Events 2025: Get Involved!](https://moffoundation.com/fall-events-2025-get-involved/) - MOFF has a packed agenda for our fall calendar. Read more if you are interested in joining the fight against ALS! Meet Lauren This charismatic South Florida native is unstoppable! After launching her own run club in May of this year, Lauren runs to empower others every Friday with her crew in Boca Raton. "There
- [Complete: 13th Annual MOFF Golf Tournament](https://moffoundation.com/2025-swing-to-find-a-cure-for-als/) - Event Concluded Where: Hunter Ranch Golf Course When: 9:30 AM Shotgun Start Click the "Register Today" link below for the following: Tournament details Registration options Silent auction donations opportunities General donation capabilities Contact the Tournament Coordinator, Neil Clayton, at nclayton@moffoundation.com if you have any questions or would like to volunteer!
- [Complete: 2025 Hike x Brunch](https://moffoundation.com/2025-hike-x-brunch/) - Event Concluded February 22, 2025 This event is in memory of Martha Olson-Fernandez, an avid hiker and the namesake of MOFF. Martha passed away from ALS related complications in 2012. Today, her memory reminds us to prioritize health and get up and move in whatever way makes you feel good. This event has evolved into
- ["We are not Zebrafish"](https://moffoundation.com/we-are-not-jellyfish-in-loving-memory-of-sandy-morris/) - ALS hits hard. No question, whether you are living alone, a single father, a mother of three, a grandparent, a college student, a professional athlete… life gets flipped, and your priorities shift. Some people choose to live privately with their disease. Others become activists in their own communities. Still others fight to position themselves at
- [Complete: 2023 Hike x Brunch](https://moffoundation.com/moff-hike-x-brunch-2023/) - Welcome to the 2023 Hike x Brunch! This is the 10th year the MOFF community has hiked to remember Martha Olson-Fernandez, all those living with ALS, and all those who have succumbed to the disease. Over the years, the event has evolved into an ALS awareness event and has welcomed participants from CA, AZ, NY,
- [Complete: Giving Tuesday 2024](https://moffoundation.com/giving-tuesday-2024/) - Giving Tuesday took place on December 4th 2024. More information on Giving Tuesday can be found on their website here. Information on how to support the ALS Community via MOFF is below. How Your Support Makes a Difference Every dollar donated this Giving Tuesday will help MOFF continue our work in three key areas: Funding
- [ALS Inspire Series](https://moffoundation.com/als-inspire-series/) - ALS is a debilitating disease. Once diagnosed, many individuals opt to remove themselves from the public eye when they lose the ability to talk, eat, smile, walk.. all activities driven by voluntary muscles. Others immediately start a bucket list. Can you imagine what you would do if you were given 3-5 years to live, or
- [ALS Inspire Series: Episode 1: Lauren Clausman](https://moffoundation.com/lauren-clausman-nyc-tcs-marathon-2023/) - Lauren Clausman is running the TCS NYC Marathon this year for MOFF and Team ALS on November 3, 2024! We are very excited for her to undertake this 26.2 mile challenge and will be supporting her along the way! This will be the second year that MOFF is represented in the NYC marathon, in 2022
- [Complete: 2024 Virtual Hike x Brunch](https://moffoundation.com/2024-virtual-hike-x-brunch/) - When: Saturday, February 24, 2024; 9:00 AM PST Where: Felsman Loop on Bishop's Peak in SLO or your favorite hike spot wherever you may be located! This event is hosted annually in memory of Martha and all those active individuals whose time was cut short by ALS. We hike in honor and in memory of
- [ALS Satellite Clinic in Santa Barbara, CA](https://moffoundation.com/als-clinic-in-santa-barbara-ca/) - UCSF Health ALS Clinic and Cottage Health in Santa Barbara have joined forces to run a satellite clinic in Santa Barbara, CA. MOFF is very grateful that this partnership has resulted in a local clinic for those living on the Central Coast. The satellite clinic was originally opened in June 2024 and will next be
- [Cancelled: Rally for a Cure: Pickleball and Bocce Ball Tournament](https://moffoundation.com/2024-rally-for-a-cure-pickleball-and-bocce-ball/) - Update: This event has been cancelled. We apologize for any inconvenience. Come join the MOFF team for the 1st Annual Rally for a Cure Event! Pickleball and Bocce Ball Options are available. Event Details: When: September 14, 2024 Where: Templeton Tennis Ranch Event Start Time: 9:00 AM PST Interested in volunteering for this upcoming event?
- [Complete: 10th Annual Golf Tournament](https://moffoundation.com/10th-annual-golf-tournament/)
- [The 6th Annual MOFF Golf Tournament](https://moffoundation.com/the-6th-annual-moff-golf-tournament/) - The 6th Annual Martha Olson-Fernandez Foundation raised an impressive $121,000!!! Cypress Ridge Golf Course claims it was their highest earning golf tournament yet! Thank you to all our sponsors, golfers, and volunteers that made this fundraising amount possible. Not only did we have a record amount of sponsors, but the tournament was completely full! The
- [ALS Leadership Summit Boston 2015](https://moffoundation.com/als-leadership-summit-boston-2015/) - On November 15 2015, Martha Olson-Fernandez Foundation officers, Larry and Natalie Fernandez, attended the ALS Leadership Summit in Boston. The summit, hosted by ALS Therapy Development Institute (TDI), offered a wealth of knowledge on recent advancements in ALS research projects. The summit and featured speakers from Biogen, ALS TDI, The Forbes Norris ALS/MDA Clinic in
- [2019 California ALS Research Summit](https://moffoundation.com/california-als-conference-at-uc-irvine-2019/) - Day 1 Takeaways: 1. Whole genome sequencing (WGS) analysis projects are being undertaken by the following collaborative bodies: Track ALS, NeuroLincs, CABB, ALS Natural History, Answer ALS, NYGC ALS Consortium, and Target ALS. The data will be available to the public via the database ALSoD in early 2019. 2. There are several active stem cell
- [ALSA ALS Walks to Defeat ALS](https://moffoundation.com/alsa-als-walks-to-defeat-als/) - SLO, East Bay, Sacramento & NYC ALS Association Walks to Defeat ALS The Martha Olson Fernandez Foundation has participated in ALS Association Walks to Defeat ALS in San Luis Obispo, New York City, East Bay, and Sacramento and since 2012. For those of you that remember, in 2012 the Martha Olson-Fernandez Foundation participated in the
- [ALS Biomarker Panel at the Society for Brain Mapping and Therapeutics Conference](https://moffoundation.com/als-biomarker-panel-at-the-society-for-brain-mapping-and-therapeutics-conference-march-15-2019/) - 15–17 March 2019 SBMT 16th Annual Congress Los Angeles Convention Center in LA FLYER The 16th Annual World Congress of SBMT brought together physicians, scientists, policy makers, funding agencies and industry to further the advances and applications in brain and spinal cord mapping and image guided therapies (operative and non-operative). The conference took place at
- [#GivingTuesday](https://moffoundation.com/givingtuesday/) - Giving Tuesday was on December 3, 2019. The MOFF Giving Tuesday campaign emphasized the urgency that the ALS disease state needs funding. Below are a few examples of how your donation can impact the ALS community. ALS is an expensive disease and can cost up to $200,000.00 a year for a single ALS household. There
- [ClinWiki x ALSA GW x MOFF](https://moffoundation.com/clinwiki-x-alsa-x-moff/) - Let's face it, the clinical trial world is overwhelming, especially if you have recently been diagnosed with a disease. ClinWiki.org is a nonprofit foundation whose mission is to make clinical trials more transparent and approachable. ClinWiki works with various stakeholders across many therapeutic areas in order to invite collaboration into a space that was previously siloed.
- [2020 Hike x Brunch: February 22](https://moffoundation.com/2020-hike-x-brunch-february-22/) - Thank you to everyone who joined us for the 6th Annual MOFF Hike x Brunch! Together we raised $6,716.80 to put towards ALS patient care and research. The hike up Felsman Loop Trail was a wonderful reminder of Martha's ability to motivate and educate each of us on the importance of exercise and healthy living.
- [7th Annual MOFF Golf Tournament](https://moffoundation.com/7th-annual-moff-golf-tournament/) - The weather was gorgeous out at Cypress Ridge Golf Course on October 5, 2019. Teams traveled from California and Arizona to support ALS patient care and research. Together we raised $114,680.00!! The VIP guests at the tournament were: Fred Fisher (President and CEO of The ALSA Golden West Chapter), Cherryl Goldstein (VP of Development for
- [2020 Virtual SLO ALS Walk](https://moffoundation.com/2020-virtual-slo-als-walk/) - MOFF ALS Walk Team Thank you to all those who helped us raise $1,825.00! Your generosity during this time of COVID-19 is what keeps the ALS patient care community going. In case you missed it, the MOFF team this year walked for people living with ALS, the families of those who passed away from ALS,
- [Healey ALS Platform Trial](https://moffoundation.com/healey-als-platform-trial/) - What is the Healey Platform Trial? An ALS clinical trial that tests 5 different therapies at 54 different trial sites across the United States. You can learn more about the structure and originality of the trial here. How many patients will be enrolled in the Healey Trial? 160 patients will be enrolled per each of
- [The Political Front: National ALS Advocacy Conference](https://moffoundation.com/als-advocacy-day-the-political-front/) - The National ALS Advocacy Conference (May 26, 2020 - June 3, 2020) The National ALS Advocacy Conference was virtual this year! The Martha Olson-Fernandez Foundation (MOFF) attended two days of the virtual event. Continue reading to get the inside scoop on the political interests of the ALS community. What is The National ALS Advocacy Conference?
- [A Solution to the ALS Diagnostic Delay](https://moffoundation.com/als-diagnostic-journey/) - The amyotrophic lateral sclerosis (ALS) diagnostic journey is unique to each individual. It has puzzled neurologists, been mistaken for allergies or back issues by physicians, stressed out families, and most significantly, it has prevented patients from knowing what is affecting their body. The median diagnostic delay for a person living with ALS is 12 months
- [ALS/MND International Alliance Scientific Advisory Council Meeting](https://moffoundation.com/international-excitement-over-als-research-progress/) - MOFF attended the ALS/MND International Alliance Scientific Advisory Council Meeting on June 17th (at 4 AM PST). It was worth it. The event was hosted by The ALS Association and featured neurologists from 10 different countries. Who attended this International Advisory Council Meeting? Dr. Jeanine Heckmann (South Africa) Dr. David Taylor (Canada) - facilitator Dr.
- [1 in 300](https://moffoundation.com/1-300/) - There is a 1 in 300 is the lifetime risk that you will develop ALS. (This post was written in June 2020 and is still relevant today.) Why is this 1 in 300 statistic is important? Keep reading. 1. Public perception of ALS The standard ALS prevalency statistic the internet provides is that
- [ALSA Patient and Caregiver Advisory Committee (PCAC) Involvement](https://moffoundation.com/pcac/) - Natalie Fernandez recently became a member of the Patient and Caregiver Advisory Committee (PCAC) at the National Chapter of ALS Association (ALSA). The PCAC is co-chaired by John Russo and Ken Menkhaus who are both incredibly knowledgable and influential ALS advocates. If you are interested in learning more about their perspective, Ken has a blog
- [Centaur Trial (AMX0035): Longterm Survival Data](https://moffoundation.com/centaur-trial-amx0035-longterm-survival-data/) - MOFF attended the NEALS webinar hosted by Dr. Sabrina Paganoni and Dr. Merit Cudkowicz on Wednesday, Oct 21, 2020. Click here to gain full access to the webinar once it becomes available. Background Information AMX0035 is a combination of two small molecule drugs: Phenylbutyrate (PB) and Tauroursodeoxycholic Acid (TUDCA). The Centaur Trial (NCT03127514) looked at
- [8th Annual MOFF Golf Tournament Results](https://moffoundation.com/2020-moff-golf-tournament-october-3-2020/) - The 8th Annual MOFF Golf Tournament took place at Cypress Ridge Golf Course on Oct. 3, 2020. It was an incredible success! Thank you to all everyone who made the event possible: sponsors, golfers, volunteers, and silent auction participants. We could not have done it without each and every one of you. Interested in participating
- [How I AM ALS is Influencing Clinical Trials Design](https://moffoundation.com/3542-2/) - I. What is wrong with the current ALS clinical trial landscape? I am going to answer this question with a vignette: An individual with ALS decides to enroll in a clinical trial that they found on ClinicalTrials.gov. They check to see if they meet the trial requirements and are pleased to learn that the trial
- [COVID-19 Impact on ALS Clinical Research](https://moffoundation.com/covid-19-impact-on-als-clinical-research/) - COVID-19 Impact on ALS Clinical Research as of July 23, 2020 Of the 95 ALS clinical trials that are currently active in the United States, only 5 were suspended due to the COVID-19 pandemic. Also, many trials that were starting their enrollment back in March, have paused their enrollment processes for the time being. Overall,
- [CRISPR and ALS](https://moffoundation.com/crispr-and-als/) - Brief Overview CRISPR is a highly specific and efficient genome editing technology. CRISPR facilitates the addition, deletion, or alteration of an organism’s DNA (NIH). If you would like a more specific explanation of CRISPR, feel free to watch the 1:39 video from the Mayo Clinic below. As one can imagine, this is exciting and simultaneously,
- [Raising Local ALS Awareness](https://moffoundation.com/raising-local-als-awareness/) - The New Times SLO recently published an article on The Martha Olson-Fernandez Foundation. The reporter, Karen Garcia, does a good job of touching on the origins of MOFF, providing a glimpse into the annual events, and highlighting MOFF's two critical programs: ALS patient care and research. MOFF is constantly working to raise ALS awareness in
- [Novus Acquisition of Anelixis](https://moffoundation.com/novus-therapeutics-acquisition-of-anelixis-therapeutics/) - The Martha Olson-Fernandez Foundation (MOFF) was very excited to hear that Novus Therapeutics had finalized its acquisition of of Anelixis Therapeutics this past September. Anelixis Therapeutics was the for-profit drug development arm of ALS Therapy Development Institute (ALSTDI) that was created specifically to develop their anti-CD40L antibody therapy for ALS known as AT-1501. An article published
- [Healey Platform Trial Monthly Updates](https://moffoundation.com/healey-platform-trial-monthly-updates/) - The clinical operations team involved with the Healey Platform Trial is truly going above and beyond the typical level of transparency. They have promised to host informal weekly Q&A sessions and will also hold monthly updates on the platform trial. If you would like to register for any of the weekly Q&A sessions or monthly
- [Prop 14 (CA)](https://moffoundation.com/prop-14/) - What's all the buzz about Proposition 14? Why is the scientific community encouraging everyone to vote "Yes" ? Prop 14 plans to use debt to fund biomedical research: $5.5 billion in state general obligation bonds to be exact. The basic math is this: $5.5B granted today will accumulate $2.3B in interest. This interest will be payed
- [ALS Research Paper Review (ALS RPR)](https://moffoundation.com/als-research-paper-review-rpr/) - Natalie Fernandez is honored to be co-chair of the newly formed ALS Research Paper Review (ALS RPR) Platform. Her co-chairs are Phil Green and John Russo. Both John and Phil are incredible ALS Advocates and ALS Research Ambassadors. Collectively, Phil and John have been involved in pretty much every major ALS nonprofit org and ALS
- [Latest ALS Research: I AM ALS](https://moffoundation.com/latest-research-news-i-am-als/) - I AM ALS revamped their website! It looks great. MOFF's favorite part of the new site is their "Latest Research" tab. It is informative, up to date, and portrayed in a comprehensible manner. Thank you Danielle Carnival and all the other scientific minds at I AM ALS! This is a great resource.
- [What Happened in Guam? (Halloween Edition)](https://moffoundation.com/what-happened-in-guam-halloween-edition/) - Classic Halloween stories have a spooky setting (like a haunted house or an abandoned log cabin), a deranged animal, and a full moon. While the story you are about to read doesn’t contain any of these elements, the reader may argue that it’s spookier, because it’s real. Let us begin. The setting is in present
- [#GivingTuesday: Complete](https://moffoundation.com/givingtuesday-december-1-2020/) - #GivingTuesday is a nationally recognized day of philanthropic giving. According to the #GivingTuesday creators, it is a "global generosity movement." Last year, the total amount that was donated to nonprofits in the U.S.A was $1,970,000,000.00! That is a pretty incredible number. This year on #GivingTuesday, MOFF is emphasizing the urgency with which we need to
- [MOFF Response to Loss](https://moffoundation.com/the-presence-of-death-in-the-als-community/) - The ALS community lost two incredible people this past Thanksgiving week. Leslie Sands (1951-2020) and Patrick Quinn (1983-2020). Our hearts go out to their families and friends. This is a difficult time for everyone during the economic and emotional hardship of COVID-19. Adding the painful loss of a loved one makes isolation that much more
- [Meet MOFF's Event Planning Intern: Victoria Humphrey](https://moffoundation.com/moff-event-planning-intern-victoria-humphrey/) - Victoria Humphrey will be joining the MOFF team this month! We are very excited to welcome her into our event planning efforts as we work to raise money to fund ALS research and patient care initiatives! Read a brief interview with Victoria below. Q: Where are you attending college and what is your major? A:
- [MGH Expanded Access Protocol (EAP) Program](https://moffoundation.com/mgh-expanded-access-protocol-eap-program/) - The Martha Olson-Fernandez Foundation will donate $30,000 from their upcoming 9th Annual Golf Tournament (02-Oct) to the Expanded Access Protocol (EAP) Program at the Healey Center for ALS at Massachusetts General Hospital. Here’s why: Amyotrophic lateral sclerosis (ALS) is a fatal, neurodegenerative disease that affects roughly 9 out of a 100,000 people in the United
- [The Don Woodward ALS Research Grant Sponsorship](https://moffoundation.com/the-don-woodward-als-research-grant-sponsorship/) - Who is Don Woodward? Don Woodward is a legendary member of the San Luis Obispo, CA community. He was an incredibly talented football player, golfer, and businessman. His name is well known in the California car industry where he started his business career at one of his grandfather’s dealerships, Lompoc Honda. Don’s name is one
- [ThinkALS Tool](https://moffoundation.com/thinkals-tool/) - The ThinkALS tool was developed by the ALS Association to assist clinicians in the ALS differential diagnosis process. On average, ALS takes one year from time of onset to a definitive diagnosis. The obvious reason a rapid diagnosis is not possible is that a diagnostic biomarker for ALS does not yet exist. That is to
- [Neil Clayton: Welcome to the MOFF Team](https://moffoundation.com/neil-clayton-welcome-to-the-moff-team/) - MOFF is pleased to welcome Neil Clayton to the MOFF team as Development Coordinator and Strategic Thought Partner. Neil joins MOFF after working in law enforcement in San Luis Obispo County for over 20 years. During his law enforcement career, Neil volunteered with law enforcement-related non profits at both the local and state level. Neil
- [2021 Virtual Hike x Brunch Event: Complete](https://moffoundation.com/2021-virtual-hike-x-brunch-event/)
- [9th Annual MOFF Golf Tournament: Complete](https://moffoundation.com/9th-annual-moff-golf-tournament-october-2-2021-a/) - Thank yous, tournament prizes, and silent auction prizes will be sent to the event participants throughout October. COVID-19 Notice: We are excited to see everyone out on the course! In order to keep everyone safe, we are encouraging that all of our golfers, volunteers and visitors have negative Covid-19 tests. If you are experiencing any symptoms
- [Art for ALS Healing: Ken Brenner](https://moffoundation.com/art-for-als-healing-ken-brenner/) - Publication Update: It is with great sadness that we share Ken Brenner passed away on February 14, 2021. He was surrounded by his loving family and in the comfort of his home. The article written below was authored before his passing. Ken Brenner is an incredibly talented artist living with amyotrophic lateral sclerosis (ALS). His
- [2022 Hike x Brunch: Complete](https://moffoundation.com/2022-hike-x-brunch/) - The Martha Olson-Fernandez Foundation Annual Hike x Brunch Saturday, February 26, 2022 and Sunday, February 27, 2022 Thank you to all donors, MOFF hikers, random SLO hikers, silent auction donors and winners, and social media giveaway participants and winners! Traditional Hike: Over 50 MOFF associated hikers completed either Felsman Loop or Bishops Peak in
- [Samantha Fernandez: 2022 NYC TCS Marathon](https://moffoundation.com/2022-tcs-nyc-marathon-samantha-fernandez/) - November 6, 2022 *** Sammi completed the NYC Marathon on Nov 6, 2022. Her race time was 4:33:35. She fundraised $20,050.00 for he Team Challenge ALS team. Awesome job, Sammi! Team Challenge ALS On November 6th, Samantha (Sammi) Fernandez will run the New York City Marathon. The 26.2 mile race will take runners through all
- [Complete: 2024 Swing to Find a Cure for ALS](https://moffoundation.com/2024-swing-to-find-a-cure-for-als/) - Interested in volunteering at the event? Email Neil at nclayton@moffoundation.com or call (805) 440-5650.
- [Complete: Swing Time Golf Mixer 2023](https://moffoundation.com/swing-time-golf-mixer-2023/)
- [2021 Fiesta Dinner: Complete](https://moffoundation.com/2021-fiesta-dinner/) - Welcome to the Martha Olson-Fernandez Foundation Fiesta Dinner This event is held each year to honor the winner of the Fiesta Raffle at the Martha Olson-Fernandez Foundation (MOFF) Golf Tournament. The winner of this year's dinner was: Sean St. Dennis! All raffle earnings were donated to the ALS Association Golden West Chapter and were earmarked
- [ALS Focus Survey](https://moffoundation.com/als-focus-survey/) - MOFF encouraged ALS families to participate in Survey 1 of the ALS Focus Survey Program. Survey 1 was developed by the ALS Association and targets ALS patients and their caregivers. The purpose was to collect information to help ALS advocates fight for access to care and financial security for those affected by ALS. Background: The
- [ALS Videos and Webinars](https://moffoundation.com/als-videos-and-webinars/) - Why read when you could watch short videos that teach you everything you need to know? Check out these ALS resources: ALS Basics Ongoing ALS Conversations Stories of People living with ALS (PALS)
- [5th Annual MOFF Hike x Brunch and 1st Annual ALS Panel Discussion](https://moffoundation.com/5th-annual-moff-hike-x-brunch/) - About 60 people came out to hike the Felsman Loop portion of Bishop's Peak in San Luis Obispo on Saturday, February 23rd. We placed roses on Martha's memorial bench and enjoyed a gorgeous view in great company. At the top of the hike, we read a poem that depicted ALS patients' incredibly difficult journey with the disease. The poem was followed by quotes that embody the resilience of ALS patients. Martha was a beautiful example of that strength and bravery in action.
- [MOFF x ALS Cure Project](https://moffoundation.com/moff-x-als-cure-project/) - The Martha Olson-Fernandez Foundation is proud to be in collaboration with the ALS Cure Project. The ALS Cure Project is run by Mike Piscotty who lost his wife, Gretchen Piscotty, to ALS in 2018. The Project is comprised of an executive council, a research counsel, and a business council. Natalie Fernandez, CFO at MOFF, sits
- [COVID-19 (SARS-CoV-2) Resources](https://moffoundation.com/i-am-als-updates-on-covid-19/) - Massachusetts General Hospital (MGH) has recently released incredibly useful webinars and Q&A sessions regarding living with ALS during this time of SARS-CoV-2. The link to their resource page is here. Follow this link to view SARS-CoV-2 resources synthesized by the ALS/MND Alliance. Click here to learn the latest ALS community updates on SARS-CoV-2 from I AM
- [ALS Podcasts](https://moffoundation.com/alspodcasts/) - Stay Connected The individuals and companies within the ALS Community are innovative and inspiring. Their collective actions illustrate how love and the fight for life motive real change. The following podcasts cover stories from people living with ALS, the science behind the disease, treatment options, caregiving experiences, and several other pertinent topics. These podcasts are
- [ALS Pepper Challenge](https://moffoundation.com/als-pepper-challenge/) - MOFF takes on the Hot Pepper Challenge In 2018 the ALS Hot Pepper Challenge went viral. At MOFF we were very excited to participate in the Hot Pepper Challenge during our 4th Annual Hike x Brunch event. We ate jalapeños, seranos, and even habañeros in order to raise ALS awareness in our community. Thank you

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