READ SUMMARIES OF TOP RESEARCH FINDINGS IN THE ALS COMMUNITY ON ALS THERAPY DEVELOPMENT INSTITUTE’S ROBERT GOLDSTEIN’S BLOG
A DIRECT LINK TO THE MOST RECENT UNIVERSITY OF OREGON STUDY
Dr. Steve Perrin of ALS TDI is interested in eradicating ALS through drug development by addressing more unconventional issues ALS patients daily in order to “develop innovative and impactful medicines from unmet medical needs” (Dr. Perrin). Topics covered on the blog range from controversial treatment questions to theories on eradicating familial ALS (yes this is possible today). This blog has a healthy level of skepticism driven by a brilliantly calculated mind. Dr. Perrin is highly respected in the ALS community and currently serves as CEO and CSO at ALS TDI.
Read his blog here: http://www.translateals.com/
The Martha Olson-Fernandez Foundation supports ALS TDI to complete our mission of funding cutting edge ALS research. ALS TDI is an incredibly driven non profit biotech company founded by the Heyward brothers in 1999. ALS TDI has intimate ties to the pharmaceutical industry, and it is the only non profit biotech dedicated solely to ALS research. To learn about the most current research at ALS TDI lab, please click on the ALS TDI logo above. For the calendar year of 2016, the Martha Olson-Fernandez Foundation has chosen to dedicate $20,000 of our donor dollars to go toward ALS TDI’s research on the C9orf72 gene.
ALS TDI also has a for profit interest called Anelixis. This project belongs to Dr. Steve Perrin and was created due to the discovery of a treatment with incredible potential called AT-1501. Please click on the image below to learn more.
Jamie Heyward, one of the founders of ALS TDI, also started the website PatientslikeMe. The Martha Olson-Fernandez Foundation encourages all ALS patients to register with PatientslikeMe so that they may join a network of support and knowledge. A large percentage of ALS patients do not qualify for clinical trials, so PatientslikeMe provides a comprehensive platform for sharing a wide range of information on quality of life, experimental drugs, and treatment findings across thousands of people living with ALS (PALS).
Augie Nieto serves as chairman for ALS TDI. His courageous battle with ALS began in 2005, and continues everyday alongside his wonderful wife, Lynne. His founding role in Life Fitness has provided an inspiring network that has been critical to fundraising for ALS TDI. It is families such as the Nieto Family that facilitate ALS TDI’s high professional standards and cutting edge research. Thank you Augie and Lynne for all that you and your family do. Read more about Augie’s Quest here.
Corey Reich (pictured above) is one of the bravest 29 year olds we know. Considering himself the lucky among the unlucky, Corey has been battling ALS since 2007. The Reich family has raised an incredible amount of money for ALS TDI over the years. The Reich family will not give up and neither will we. To listen to his NPR Here and Now interview with Robin Young, please click here. You rock Corey.