READ SUMMARIES OF TOP RESEARCH FINDINGS IN THE ALS COMMUNITY ON ALS THERAPY DEVELOPMENT INSTITUTE’S research page
Remember the 2016 findings that the University of Oregon released about the success of Copper-ATSM on animal models with ALS? Read an update from principal researcher Alexander Michaels here. Trace the findings straight to the most recent clinical trial status here.
Drugs Drugs Drugs
Large companies are starting to test out molecules and treatment options for ALS. Click on the company names below to learn about their role in ALS research:
The Martha Olson-Fernandez Foundation supports ALS Therapy Development Institute (ALS TDI) to complete our mission of funding cutting edge ALS research. ALS TDI is an incredibly driven non profit biotech company founded by the Heyward brothers in 1999. ALS TDI is located in Cambridge, MA and has intimate ties to the pharmaceutical industry, thus providing influence and actionability when it comes to testing and developing molecules for ALS treatment. We trust ALS TDI to be the most accurate, efficient and reliable source of ALS research. Below is a detailed timeline of our donations to ALS TDI.
2016: MOFF chose to dedicate $20,000 of our donor dollars to go toward ALS TDI’s research on the C9orf72 gene.
2017: MOFF donated $25,000 toward the drug development of AT-1501 which is currently in the preclinical drug development stage.
2018: MOFF has promised $25,000 to be donated to ALS TDI’s mission of building up their blood and tissue sample bank in order to seek out biomarkers to identify and track disease progression in ALS. Identifying biomarkers is a preliminary, critical step in developing a treatment and cure for ALS.
ALS TDI also has a for profit interest called Anelixis. This project belongs to Dr. Steve Perrin and was created due to the discovery of a treatment with incredible potential called AT-1501. Click here to read more.
Jamie Heyward, one of the founders of ALS TDI, also started the website PatientslikeMe. The Martha Olson-Fernandez Foundation encourages all ALS patients to register with PatientslikeMe so that they may join a network of support and knowledge. A large percentage of ALS patients do not qualify for clinical trials, so PatientslikeMe provides a comprehensive platform for sharing a wide range of information on quality of life, experimental drugs, and treatment findings across thousands of people living with ALS (PALS).
Augie Nieto serves as chairman for ALS TDI. His courageous battle with ALS began in 2005, and continues everyday alongside his wonderful wife, Lynne. His founding role in Life Fitness has provided an inspiring network that has been critical to fundraising for ALS TDI. It is families such as the Nieto Family that facilitate ALS TDI’s high professional standards and cutting edge research. Thank you Augie and Lynne for all that you and your family do. Read more about Augie’s Quest here.
Corey Reich (pictured above) is one of the bravest 30 year olds we know. Considering himself the lucky among the unlucky, Corey has been battling ALS since 2007. The Reich family has raised an incredible amount of money for ALS TDI over the years. The Reich family will not give up and neither will we. To listen to his NPR Here and Now interview with Robin Young, please click here. You rock Corey.